Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Tuesday, July 13, 2010

WHEW!

The Medicaid meeting went well, I think. Julia was there the whole time and showing her "true colors" (on a bad day)which I think gave the medicaid person a real look into what goes on here in the evenings. We talked about a lot of stuff, and the medicaid rep is going to give me some contact info for someone to help advocate for an appropriate bed for Julia - so we can hopefully get rid of the "cage". She was very polite and patient even though Julia was tantruming for the whole hour. We will keep our fingers crossed. I mentioned the in home health care service saying that Julia was "close to normal" and she just kind of shook her head and said she would talk to them about the situation. I asked her to talk to them nicely about it, as I am likely going to have to hire at least one, if not two more care providers in the near future and the home health care service has to approve it. I don't want a bad taste in their mouths when I call for the interviews with the people I find. I will give it a week or so before I call for the interviews. But, all in all, it went really well. Thank you GOD!

Susan

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