We just got back from Julia's neuropsych evaluation - only took about three and a half hours instead of 4-8, so that was good. She was in FULL OUT tantrum mode when we (my mom, shawn, julia, and I) got there, so the Dr got to witness that part of it. While they did the testing on her, the Dr talked to us in a separate room about, well, everything. This woman was AMAZING. I am so glad to have been set up with her for the appointment. I think she will be an amazing advocate for Julia's case, as there are a lot of things the attorneys are not agreeing on at this point.
Good news and bad - good news first - Julia has increased her scores on the Mullen Scale in the area of gross motor function from when she was evaluated in November. Bad news, she has regressed in Visual reception, Fine Motor, Receptive Language, and Expressive Language since november. Well, we have been seeing it lately here at home and even school has mentioned it regarding the tantrums. So, there you have it. Basically she is functioning at 18-22 months....still.
So, not the best news today, but, hey, tomorrow is another day, and if we can get Julia going with some of the therapies this Dr HIGHLY recommended - primarily ABA therapy, she thinks we can get her higher. But ABA is not covered by insurance.....I have a little money saved up for her school, and could throw some at ABA for a while if I have to - just pray they will allow for this therapy in her settlement. It is pretty intensive behavior therapy - she suggested it be done daily - someone at school - and someone at home....that's going to be a pretty penny.
Well, keep her in your prayers, and may the government do the right thing by her.
Susan
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