Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Monday, July 12, 2010

medicaid

Julia has her evaluation with medicaid tomorrow morning. Those who know, know how stressful this can be, as, because she can walk, they see her as "normal". Forget the inability to talk, for get the inability to affectively use her left hand, forget the hemiplegia and braces, forget the lack of using utensils to eat, forget the inability to bathe herself or get dressed without being placed on a baby table, forget the 10 second attention span, forget the diapers at almost five years old, forget no "stranger danger"......that's all normal, right?

God has been looking out for me lately (a lot) and I am hoping he will have time tomorrow morning to do the same.

Julia is doing great. Has a great weekend with grandma and grandpa and got to ride a "real" big horse....little did these people know she has been riding for over two years now! haha! NOW THERE, she may be ahead of the curve! Don't tell medicaid!

Good day, good night, and prayers for tomorrow!

Susan

1 comment:

  1. Yes, she is a very "typical" almost 5 year old. They need to live with her for 24 hours to see the real Julia. Go Baby Girl! God is watching over all of you.

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