So, the news from children's wasn't so great, but not horrible either. I had a conversation with Julia's Life Care Planner after her appointment which was reassuring.
Then I had three hours to do nothing....no kids....(well laundry, but that is relaxing for me), and I had three other FANTASTIC phone calls that I think are going to affect my future greatly! I am ESTATIC tonight and hope it continues...............God has his eyes on my family lately and I hope it all works out!!!!!
Just when you think you are sinking, prayer does work!
Good night all!!!!!
Susan
Julia's Story
- Julia
- Colorado
- Julia was born a healthy baby on 12-28-05. She was a delight to her family. On January 5th,2007, 1 week past her 1st b-day, our family's lives changed forever. Julia had been seizing most of the night, was transported to the nearest ER for stabilization, and then airlifted to Miami Children's hospital, where she stayed in PICU and the neurology ward for nearly one month. Her diagnosis? Encephalitis (inflammation of her brain) most likely attributed to the MMR-V (measles, mumps, reubella, chicken pox) vaccine she had received nine days previously. When Julia left the hospital, she was functioning at an 8 week level. She is globally delayed, nonverbal and has significant left sided hemiplegia along with severe behavior issues. It has been over 4 years since her MMR-V encephalitis, and Julia has progressed, but has a very long way to go. Julia's case with the Vaccine Court was recently conceded and the settlement is complete. I am thankful for the government's concession. Julia lives with her brother, Jack who is 8 and her mom, Susan, and Mr. Shawn. Julia and her family are hanging in there and hope you enjoy her blog! Go Julia!
Julia at weekly hippotherapy!
Julia and "Traveler" at hippotherapy!
Julia With Pig Tails!
What a cutie! Its rare for her to keep her hair pulled out of her face! Classic pic!!
Julia being cool!
Julia in her Bubble Wrapped World!
Mom curled my hair!
My handsome brother Jack!
My wild and crazy brother who I love so much!
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