This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!
Wednesday, July 21, 2010
GREAT NIGHT!
Julia's pediatrician rocks...that's all I can say right now. WOW!
Julia was born a healthy baby on 12-28-05. She was a delight to her family.
On January 5th,2007, 1 week past her 1st b-day, our family's lives changed forever. Julia had been seizing most of the night, was transported to the nearest ER for stabilization, and then airlifted to Miami Children's hospital, where she stayed in PICU and the neurology ward for nearly one month. Her diagnosis? Encephalitis (inflammation of her brain) most likely attributed to the MMR-V (measles, mumps, reubella, chicken pox) vaccine she had received nine days previously.
When Julia left the hospital, she was functioning at an 8 week level. She is globally delayed, nonverbal and has significant left sided hemiplegia along with severe behavior issues.
It has been over 4 years since her MMR-V encephalitis, and Julia has progressed, but has a very long way to go. Julia's case with the Vaccine Court was recently conceded and the settlement is complete. I am thankful for the government's concession.
Julia lives with her brother, Jack who is 8 and her mom, Susan, and Mr. Shawn. Julia and her family are hanging in there and hope you enjoy her blog! Go Julia!
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