Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Tuesday, October 13, 2009

Cha Cha Cha Cha Changes.......

Wheels are turning, things are changing, and my brain hurts!

Lots of things going on, lots of paperwork flooding my brain and my countertops, but in the end it will mean positive changes for Julia and that is all that matters.

I have most of the paperwork for the school filled out....now I just need to figure out how to get her to school four days a week, oh, and how to get her home. Shawn has offered to take her most days and pick her up most afternoons, but I don't want all of that pressure on him, especially with winter coming in, so, I am looking to have some help at least a couple days a week. It will all come together I am sure....if you know anyone that might want to help - please give them my email address!!

I'll update as school progresses!

Susan

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