Wednesday, October 20, 2010
Dr Wakefield!
I MET HIM! WOO HOO! What an honor to hear him speak and to actually speak to HIM briefly. I have been reading his books, listening to his interviews, following his knowledge for the last four years, and TONIGHT - I MET HIM! Even got a picture! I admire him for sticking to his guns on his controversial issues - as I have as well with leaving typical practice because of my views on the vaccination protocols for animals. Two peas in a pod, I guess! :)
Monday, October 18, 2010
Tomorrow.......
So, tomorrow is more than a "typical tuesday" of PT, OT, Aug Com....we have to get fitted for julia's (8th??) brace before her therapies....we were hoping the botox she had last month would restraighten her leg enough for the current brace to continue working, but, alas....NOPE. Time for a new one. This one is going to be pretty "complex"! It can work is two ways - as a tall one up to her knee, or as a short one only to her ankle.....so HOPEFULLY, we can make EVERYONE happy with this one, as none of her therapists can agree on what is best...and what do I know.....So, this convertible one should be great!
Expecting to hear from Julia's attorneys soon - if not, hearing is set for the fourth of November.....then at least this part will be done....then just to figure out how to go forward....which attorney do I need for this? So confusing. NEVER thought I would need so many attorneys. YUCK!
Anyway, it will all work out. As far as job prospects - I have a potential spay/neuter ONLY practice that wants me for at least two fridays in November...and they may hire me on for Friday, Saturday, and Sunday for a while. OR, if they don't....I have a potential offer with a mom of a 21 year old CP child (adult) who needs care every weekend....from $50 an hour to $15.....but, hey, if I can learn what may lie ahead for Julia - it would be great experience until Caring Pathways takes off! I am excited about either. AND excited to start exercising on my "days off" until Caring Pathways needs me! It will all work out. Forget the bad dreams I've been having lately.....as one friend put it - "I have always been a firm believer that if you are doing what is morally right, the creator of the universe will make a way out for you and provide abundant blessings." So, I am counting on that! :)
Good night all - and pray for julia's patience tomorrow during all the therapy and brace fittings!
Susan
Expecting to hear from Julia's attorneys soon - if not, hearing is set for the fourth of November.....then at least this part will be done....then just to figure out how to go forward....which attorney do I need for this? So confusing. NEVER thought I would need so many attorneys. YUCK!
Anyway, it will all work out. As far as job prospects - I have a potential spay/neuter ONLY practice that wants me for at least two fridays in November...and they may hire me on for Friday, Saturday, and Sunday for a while. OR, if they don't....I have a potential offer with a mom of a 21 year old CP child (adult) who needs care every weekend....from $50 an hour to $15.....but, hey, if I can learn what may lie ahead for Julia - it would be great experience until Caring Pathways takes off! I am excited about either. AND excited to start exercising on my "days off" until Caring Pathways needs me! It will all work out. Forget the bad dreams I've been having lately.....as one friend put it - "I have always been a firm believer that if you are doing what is morally right, the creator of the universe will make a way out for you and provide abundant blessings." So, I am counting on that! :)
Good night all - and pray for julia's patience tomorrow during all the therapy and brace fittings!
Susan
Monday, October 11, 2010
WHEW!
My brain has felt like a walking contradiction for the last four years since the vaccine injury to Julia. I have 30 more days to deal with that. Looking for work in a totally different field....and will find it...We will be ok. Its going to be tight for some time until I figure it out, but, I just have this calm feeling that it is all OK. It is HIS plan, and we will be fine! No more vaccines for me - in 30 days.
Thank you God, and Larry Magnuson, and Don, my future former boss, for being so understanding.....And Lord help me Kohls, or Rod letting me be a snow plow driver. Time for something new!!!! SO EXCITED, yet scared. I may be doing wrong by my kids for the next few months, but the potential of the years after is outstanding! Larry, I am here for you!
Susan, Shawn, Jack, and Julia
Thank you God, and Larry Magnuson, and Don, my future former boss, for being so understanding.....And Lord help me Kohls, or Rod letting me be a snow plow driver. Time for something new!!!! SO EXCITED, yet scared. I may be doing wrong by my kids for the next few months, but the potential of the years after is outstanding! Larry, I am here for you!
Susan, Shawn, Jack, and Julia
Wednesday, October 6, 2010
Settlement is almost DONE!
We are 99.9% done with the settlement......no numbers yet.....they can't tell me until all attorneys agree - but we are almost there. Yeah Julia - you WILL be taken care of forever. I LOVE YOU BABY GIRL!
Written (supposedly) by a child with autism......very true.....Julia and our family to a "T"
I understand that we will be visiting each other for some get-togethers this year. Sometimes these visits can be very hard for me, but here is some information that might help our visit to be more successful. As you probably know, I am challenged by a hidden disability called Autism, or what some people refer to as Pervasive Developmental Disorder (PDD). Autism/PDD is a neurodevelopmental disorder which makes it hard for me to understand the environment around me. I have barriers in my brain that you can’t see, but which make it difficult for me to adapt to my surroundings.
Sometimes I may seem rude and abrupt or silly and out of control, but it is only because I have to try so hard to understand people and at the same time, make myself understood. People with autism have different abilities. Some may not speak, some will write beautiful poetry. Others are whizzes in math (Albert Einstein was thought to be autistic), or may have difficulty making friends. We are ALL different and need various degrees of support.
Sometimes when I am touched unexpectedly, it might feel painful and make me want to run away. I get easily frustrated, too. Being with lots of other people is like standing next to a moving freight train and trying to decide how and when to jump aboard. I feel frightened and confused a lot of the time. This is why I need to have things the same as much as possible. Once I learn how things happen, I can get by OK. But if something, anything, changes then I have to relearn the situation all over again! It is very hard.
When you try to talk to me, I often can’t understand what you say because there is a lot of distraction around. I have to concentrate very hard to hear and understand one thing at a time. You might think I am ignoring you – I am not. Rather, I am hearing everything and not knowing what is most important to respond to.
Get-togethers are exceptionally hard because there are so many different people, places and things going on that are out of my ordinary realm. This may be fun and adventurous for most people, but for me, it’s very hard work and can be extremely stressful. I often have to get away from all the commotion to calm down. It would be great if I had a private place set up to where I could retreat every time I go to get-togethers.
If I cannot sit at the meal table, do not think I am misbehaved or my parents have no control over me. Sitting in one place for even five minutes is often impossible for me. I feel so antsy and overwhelmed by all the smells, sounds, and people – I just have to get up and move about. Please don’t hold up your meal for me – go on without me, and my parents will handle the situation the best way they know how.
Eating in general is hard for me. If you understand that autism is a sensory processing disorder, it’s no wonder eating is a problem! Think of all the senses involved with eating. Sight, smell, taste, touch AND all the complicated mechanics that are involved. Chewing and swallowing is something that a lot of people with autism have trouble with. I am not picky – I literally cannot eat certain foods as my sensory system and/or oral motor coordination are impaired.
Don’t be disappointed if Mom hasn’t dressed me in the best clothes there are. It’s because she knows how much stiff and frilly clothes drive me buggy! I have to feel comfortable in my clothes or I will just be miserable. When I go to someone else’s house, I may appear crabby. Things have to be done in ways I am familiar with or else I might get confused and frustrated. It doesn’t mean you have to change the way you are doing things – just please be patient with me, and understanding of how I have to cope. Mom and Dad have no control over how my autism makes me feel inside. People with autism often have little things that they do to help themselves feel more comfortable. The grown-ups call it “self-regulation” or “stimming.” I might rock, hum, flick my fingers, tap a string, or any number of different things. I am not trying to be disruptive or weird. Again, I am doing what I have to do for my brain to adapt to your world. Sometimes I cannot stop myself from talking, singing, laughing, or doing an activity I enjoy. The grown-ups call this “perseverating” which is kinda like self-regulation or stimming. I do this only because I have found something to occupy myself that makes me feel comfortable. Perseverating behaviors are good to a certain degree because they help me calm down.
Please be respectful to my Mom and Dad if they let me “stim” for a while as they know me best and what helps to calm me. Remember that my Mom and Dad have to watch me much more closely than the average child. This is for my own safety, and preservation of your possessions. It hurts my parents’ feelings to be criticized for being over-protective, or condemned for not watching me close enough. They are human and have been given an assignment intended for saints. My parents are good people and need your support and not rude remarks.
Gatherings are filled with sights, sounds, and smells. The average household is turned into a busy, frantic, festive place. Remember that this may be fun for you, but it’s very hard work for me to conform. If I fall apart or act out in a way that you consider socially inappropriate, please remember that I don’t possess the neurological system that is required to follow some social rules. I am a unique person – an interesting person. I will find my place at these celebrations that is comfortable for us all, as long as you’ll try to view the world through my eyes!
-Author Unknown
I do not know who wrote this, I do feel it can help so many, Bless the child that wrote this letter.
Sometimes I may seem rude and abrupt or silly and out of control, but it is only because I have to try so hard to understand people and at the same time, make myself understood. People with autism have different abilities. Some may not speak, some will write beautiful poetry. Others are whizzes in math (Albert Einstein was thought to be autistic), or may have difficulty making friends. We are ALL different and need various degrees of support.
Sometimes when I am touched unexpectedly, it might feel painful and make me want to run away. I get easily frustrated, too. Being with lots of other people is like standing next to a moving freight train and trying to decide how and when to jump aboard. I feel frightened and confused a lot of the time. This is why I need to have things the same as much as possible. Once I learn how things happen, I can get by OK. But if something, anything, changes then I have to relearn the situation all over again! It is very hard.
When you try to talk to me, I often can’t understand what you say because there is a lot of distraction around. I have to concentrate very hard to hear and understand one thing at a time. You might think I am ignoring you – I am not. Rather, I am hearing everything and not knowing what is most important to respond to.
Get-togethers are exceptionally hard because there are so many different people, places and things going on that are out of my ordinary realm. This may be fun and adventurous for most people, but for me, it’s very hard work and can be extremely stressful. I often have to get away from all the commotion to calm down. It would be great if I had a private place set up to where I could retreat every time I go to get-togethers.
If I cannot sit at the meal table, do not think I am misbehaved or my parents have no control over me. Sitting in one place for even five minutes is often impossible for me. I feel so antsy and overwhelmed by all the smells, sounds, and people – I just have to get up and move about. Please don’t hold up your meal for me – go on without me, and my parents will handle the situation the best way they know how.
Eating in general is hard for me. If you understand that autism is a sensory processing disorder, it’s no wonder eating is a problem! Think of all the senses involved with eating. Sight, smell, taste, touch AND all the complicated mechanics that are involved. Chewing and swallowing is something that a lot of people with autism have trouble with. I am not picky – I literally cannot eat certain foods as my sensory system and/or oral motor coordination are impaired.
Don’t be disappointed if Mom hasn’t dressed me in the best clothes there are. It’s because she knows how much stiff and frilly clothes drive me buggy! I have to feel comfortable in my clothes or I will just be miserable. When I go to someone else’s house, I may appear crabby. Things have to be done in ways I am familiar with or else I might get confused and frustrated. It doesn’t mean you have to change the way you are doing things – just please be patient with me, and understanding of how I have to cope. Mom and Dad have no control over how my autism makes me feel inside. People with autism often have little things that they do to help themselves feel more comfortable. The grown-ups call it “self-regulation” or “stimming.” I might rock, hum, flick my fingers, tap a string, or any number of different things. I am not trying to be disruptive or weird. Again, I am doing what I have to do for my brain to adapt to your world. Sometimes I cannot stop myself from talking, singing, laughing, or doing an activity I enjoy. The grown-ups call this “perseverating” which is kinda like self-regulation or stimming. I do this only because I have found something to occupy myself that makes me feel comfortable. Perseverating behaviors are good to a certain degree because they help me calm down.
Please be respectful to my Mom and Dad if they let me “stim” for a while as they know me best and what helps to calm me. Remember that my Mom and Dad have to watch me much more closely than the average child. This is for my own safety, and preservation of your possessions. It hurts my parents’ feelings to be criticized for being over-protective, or condemned for not watching me close enough. They are human and have been given an assignment intended for saints. My parents are good people and need your support and not rude remarks.
Gatherings are filled with sights, sounds, and smells. The average household is turned into a busy, frantic, festive place. Remember that this may be fun for you, but it’s very hard work for me to conform. If I fall apart or act out in a way that you consider socially inappropriate, please remember that I don’t possess the neurological system that is required to follow some social rules. I am a unique person – an interesting person. I will find my place at these celebrations that is comfortable for us all, as long as you’ll try to view the world through my eyes!
-Author Unknown
I do not know who wrote this, I do feel it can help so many, Bless the child that wrote this letter.
Monday, October 4, 2010
Seriously?
Why do bad things happen all the time to good people?
My mother got fired from her job of what, 15 years? One of my good friends got evicted from her apartment where she was living with herself and her two kids (and getting a whopping $125 a month in child support from her ex who makes bank, but claims to be unemployed). And many more examples available......as "some" would say - Karma - but I disagree. These are good people living in a world that just isn't fair at times.
We hope to be hearing something about the settlement in the next month or so.....so, hoping I can help out at least these two people if not more. I just don't understand it.
Julia is a bit sick this week - very grumpy, runny nose, tired, etc.....Hopefully she will be feeling better by saturday for the tournament. Lots of giving people have donated, and, if the weather holds up, it should be a success. Have to keep looking on the bright side! Haha!
Got some great pics of Jack and Julia, Shawn and I this last weekend. Can't wait to get some framed for our house! The photo session was a little like "herding cats", but we got it done!
Take care everyone! Hope to have some good news soon! And we may have three more roomates soon - just want to help out a good friend and her two kids!
Susan
My mother got fired from her job of what, 15 years? One of my good friends got evicted from her apartment where she was living with herself and her two kids (and getting a whopping $125 a month in child support from her ex who makes bank, but claims to be unemployed). And many more examples available......as "some" would say - Karma - but I disagree. These are good people living in a world that just isn't fair at times.
We hope to be hearing something about the settlement in the next month or so.....so, hoping I can help out at least these two people if not more. I just don't understand it.
Julia is a bit sick this week - very grumpy, runny nose, tired, etc.....Hopefully she will be feeling better by saturday for the tournament. Lots of giving people have donated, and, if the weather holds up, it should be a success. Have to keep looking on the bright side! Haha!
Got some great pics of Jack and Julia, Shawn and I this last weekend. Can't wait to get some framed for our house! The photo session was a little like "herding cats", but we got it done!
Take care everyone! Hope to have some good news soon! And we may have three more roomates soon - just want to help out a good friend and her two kids!
Susan
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