Big Day Tomorrow!

Julia has quite a day lined up for tomorrow!

She is going to skip Occupational Therapy and Augmentative Communication Therapy tomorrow (though I am bummed about that because she is doing so well and we want to get her a communication device asap), because she has her first DENTIST appointment tomorrow. Anyone who has ever watched her or tried to brush her teeth knows how this is going to go........Julia's Life Care Planner suggested I get this set up, to see if cleaning her teeth while she is awake is even possible - I try to brush, so does Shawn and Grandma, but the quality of the brushing is questionable. So, off to the dentist we go to see what shape her teeth are in. The dentist said we may get nowhere, and they may have to refer her to an outpatient facility that can sedate or anesthetize her for this....this is important info for the Life Care Planner, as it will determine if they will cover future sedations/anesthesia for dental care. I hope they are able to do it without meds, but, if they can't we need to know that. I am worried about what they will find in that mouth if they can do it and am hopeful they can give me some direction on getting her teeth brushed. We all do our best, but......Anyway, it has been my thought that these are her baby teeth anyway and will be falling out at age 6 or so anyway, but who knows if at age six we will be able to do it......I hope so!!!!

After the dentist, I have a nurse coming over recommended by medicaid, to see if she qualifies for any at home care. Someone to help out a few days a week, a couple hours a day, so that I can keep the house clean, cook dinner, spend time with Jack, have someone trained to do her in home therapy in the evenings....just to free up some time for me to take care of the homes other needs. So, I have three people who are interested in the job coming over tomorrow to see what its all about. They have to show that they know how to handle Julia, which they do as all of them have watched her many times. I hope this goes well, as this house is a mess many nights, and I want Jack to have some kind of a normal life a few nights a week! We could go to a movie together! How cool is that!

So, I will update tomorrow how all that goes. Please pray it goes well. I have all the PT, OT, ST plans written out with guidance from her therapists, etc....so, have been busy with my homework to make this happen, aside from all the paperwork and phonecalls involved with medicaid (an over two year battle) to get to this point! Things will be settling here soon I hope. I know!

Susan