Julia had her 6 month follow up with neurology today. The news is not good or bad - not suprising -basically just wait and see again. One bit of concern was that her head has not grown since the vaccine injury three yrs ago. Her weight and height are in the 75 and 55% but her head is too small to even be on the charts. I asked about repeating an MRI and they said it really won't give us much information and that the only way to see if she is getting better is to SEE her get better. She explained to me that with the damage being primarily on her frontal lobes of her brain (both sides) that she is always going to have issues with behavior and impulse control. She said she will never be normal. But that she still has hope that she will improve - to what degree??? nobody knows. She said me putting her in that school that I did was the best thing I could have done for her - that hopefully the structure will teach her about appropriate behavior and socialization. She said it will likely take a lot of time, and I only have enough money for about 10 months for the school, so i will have to figure that one out.
I am so so so very angry about what happened to her. The dr's seem so callous - well maybe not callous, but just very "nonchalant" or "indifferent" about it all - i guess i get that way too in vet med, but these are people KIDS, not just dogs and cats. I don't know - i want it put to me straight, but it hurts to see them so...whatever....about it. They never knew her "before" - that she was an incredible baby with a fabulous personality, and now her life is FOREVER changed because of a stupid vaccine, for something she NEVER would have probably gotten anyway. I am so sad today. Happy birthday to me.....whatever. I just want to go to bed - tomorrow is another day.
Thanks to all of you who show your continued support for Julia and her crazy mom! :) Kidding, sort of.
Susan
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