Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Tuesday, April 13, 2010

New Pediatrician

Well, i found the ped of my dreams (i think)............i took jack in for his 7 yr check up. Jack is fine - other than some problems with peeing in his pants still - which the dr thinks may be stress induced as they only occur about 3 times a year for about a week.....i thought it was odd that he was only in the 38% in height since his dad is so tall, but he said not to worry. If he doesn't start "sprouting" in height, we will look into it, but he wasn't concerned. He found some issues with his knees, but nothing to worry too much about for now. Likely an inhereted issue that we can't do much about and it isn't bothering him for now. He was able to remove the tube in Jack's ear that has been lingering for 5 years - the last ped wanted me to go to a specialist to get it removed - he got it out in two minutes. Jack (and the new doc) passed his exam with flying colors.

I then mentioned Julia to him, as I have not been that impressed with her former ped. He agreed with the vaccine as the cause of her encephalitis and told me his special interest was developmental delays and wanted her records right away! He attends classes on delays, he is familiar with brain injuries, AND he is familiar with coding, etc, for things with medicaid.

When we left, I got a call on my cell from him, which I missed because i couldn't find my phone, and he said he was leaving the office but wanted me to call him back on HIS CELL PHONE and gave me his number, regarding jack and some meds that might help with his peeing in his pants way to often.

Anyway, very excited about a ped who cares and gets it. He said, "i can understand, to the best ability that I can, what you are going through with julia, but you are the one living it, and i hope i can help you out."

What a great doc! Hard to find these days!

Susan

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