Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Tuesday, August 18, 2009

Encephalitis survivor - Lynn

Today, I had the joy of meeting a friend of a friend named Lynn who suffered from encephalitis (likely misquito transmitted) at 6 years of age. She is now in her late 50's and appears to be doing GREAT! She was in a coma at the age of six for six weeks, and when she came out of it, she was unable to walk and unable to talk. She said her recovery took years - though it seemed to me her speech came back in a quicker timeframe than Julia's.....but she wasn't exactly sure how long it took and is going to speak with her mother about those things.

Anyway, we had a nice discussion, and she gave me a dose of "hope" that I have been needing for quite some time. She said her doctors told her mom that she would never graduate from high school - and she did! She said school was difficult for her always, but she studied very hard and graduated - not only from high school, but from college, and even got her masters!

It was interesting to talk to someone who has been where Julia is. She said that Julia probably knows much more than we think she does and to try as hard as possible to treat her like a normal kid, and to talk to her just like I would have spoken to Jack when he was little - even though she is unable to verbally respond. She told me to NEVER give up hope on the communication thing - and gave me some ideas on communicating with her now.

Anyway, it was a very eye opening conversation we had, and I hope the relationship continues. What a nice lady.

Susan

2 comments:

  1. what a blessing to meet her! i love positive things! thanks for sharing.

    ReplyDelete