Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Tuesday, May 11, 2010

Closer still!

I got an email tonight (while shawn and I were on our "date" at the potty training for special needs kids lecture) from Julia's Life Care Planner. The Dept of Justice has entered their life care plan for Julia with the vaccine court. Now JULIA'S Life Care Planner and the DOJ Life Care Planner duke it out. Roberta, "our" life care planner, warned me that the questions were going to be coming in in droves over the next few weeks and it is time to finalize ALL out of pocket expenses and make sure we have ALL current medical records to support Julia's case in court. Looks like my "side work" is about to build up - but for Julia - it will be my PRIMARY work. If it gets too crazy, I will take time off of work. I'm sorry, little dog Fluffy, if you have diarrhea today, MY DAUGHTER needs me now!

I was day dreaming of a job at walmart bagging groceries. Shawn says I wouldn't last there, too boring and non-stimulating - but, really, I am ready....if only my finances were! haha! Looks like fluffy will have to continue to support me for now.

The toilet training lecture was AWESOME! AND it was put on by the SAME person that is doing the autism round table that shawn and I are attending! What a small world.

This special needs world is amazing - some of the things they talked about in the lecture tonight were so inspiring - the way people dedicate their lives to potty training the disabled (kids and adults) and the ways the figure out to do it!!!!! Maybe walmart is not my calling....maybe this special needs world is - just need to figure out which part of it......

Susan

Oh, we have IDEAS for Julia and the potty!

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