Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Friday, December 11, 2009

Early Christmas Present!

Julia has been approved for some in home care in the evenings a few nights a week! WOO HOO! Thank you so much Accent on Independence! She will start receiving these services next week! Basically they come into the home, help with her evening therapies, prepare her meals, feed her, bathe her, and get her to bed! This leave me some time to spend with Jack one on one and to get things done that I normally cannot - like filing these mountains of paperwork sitting on my table! Need to get everything organized for the attorney's visit which should be coming in January or February!!!

ALSO, the day after her birthday - 12-29-09, she starts getting free diapers from medicaid! I know this sounds small and silly, but diapers for four years have become very expensive!! This will free up a little money for me to hopefully be able to continue her hippotherapy - maybe only twice monthly instead of every week - but that's better than nothing considering how much she loves it! Her donations are running out from the fund raiser Shawn put together for her last year....I was surprised they didn't run out sooner, but everyone was so generous last year - we made it from february to december! Thanks SaddleUp Foundation for working with her so well - she loves her time with you! Thank you all again!

Julia has been doing great lately at school. She sits in circle time for minutes at a time. She eats at a table without being restrained. She naps on a mat like all the other kids. I am so thankful she is there and hope her progress continues!

Susan

1 comment:

  1. It is nice to hear your such a positive tone for your family. It was also wonderful to see the BIG family pictures from Thanksgiving....blessings come in many forms.

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