Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Wednesday, December 23, 2009

Almost Merry Christmas!

Its almost here....just two more days!! Santa, Shawn, Grandma, and many others have loaded her up with loot - lots of things i think she will enjoy and will also be therapeutic in a round about way. Still hoping she gets some donations for Hippotherapy at Saddle Up - but we will see. If not, I will continue to send her twice monthly - as she really does enjoy it. Thank you Nora for taking her there on a pretty regular basis, and even rearranging your schedule to make it work for her. Hopefully after the holidays this will continue!

I received a phone call from Julia's school director today regarding an issue that I will not discuss here, as it is the holidays, and the issue is ludicrous(something to do with an "artist" attorney......an artist attorney and special needs school - i don't get it......) but I am glad to have spoken to the director, as the positive side of the conversation negated the stupidity of the reason he called in the first place. He said that he and Julia's teachers and her therapists see Julia as such a joy to work with. She has fit in so well, and is able to participate in most of the activities right along with the other kids! Even her therapist at Children's Hospital commented on how "on" Julia has been during her last 3 weekly sessions that we take her to on tuesdays! I do contribute most of this to the great job Mark Graham and The Rise School are doing for Julia. I am so happy to have found them.

Julia has an appointment for the ABM method this coming Tuesday. It is another alternative treatment that I am hoping to sign her up for - I have heard great things about this! I sent several of you all the link, and my links don't work here - but you can google it http://www.highlandshealthandhealing.com/Anat.htm
She has her initial eval on tuesday, and then we will try to set up some kind of schedule for this - of course the clinic is in denver....so maybe we could set it up after her school lets out at 2:30 if she gets a good nap at school. We will figure it all out......i just hope it helps!

Anyway, Merry Merry to everyone. And a great New Year, too!

Susan

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