Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Sunday, May 10, 2009

What an amazing woman....and family. As many of you know, I have been struggling lately with my grief over Julia, yes, even though it was over two years ago. I was feeling depressed, unappreciated, misunderstood, and alone. It was taking a toll on many of my relationships and I was losing hope for remaining "functional". Then an odd series of events occurred.

We get a weekly newspaper in Castle Rock - a small community newspaper - one that I NEVER read - no time for things like that, right? I just picked them up off the driveway and threw them straight in the trash. Well, there was one on the drive for about 3 or 4 days and Jack brought it into the house and asked what to do with it. The trash can was full, so we said, just throw it on the table, and he did. For whatever reason, I picked it up, took it out of the plastic, and read the front page. The following story was highlighted.

http://coloradocommunitynewspapers.com/articles/2009/05/05/news_press/news/07_rm_alexis.txt

I told Shawn I wanted to go to the book signing, but was unable to make it due to work on Saturday. I then told him I really wanted to go to the open house, not sure really what to expect or if I would even get to speak with Margaret. Well, we went, and we talked, and we seemed to have a mutual understanding of how it feels to live with these situations. She confirmed many of my feelings as normal, but also, carefully, corrected some of the things I was doing that were helpful to nobody. I bought a few copies of her book for certain people and have already read half the book in about an hours time.

I am so glad to have met Margaret. She has given me a glimmer of hope and a brighter feeling of FAITH than I have had in a very very long time.

Alexis's website..check it out...

http://rememberingalexis.com/




Susan

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