Neurologist Appointment

Julia and I went to see Dr Parsons at Childrens Hospital yesterday. We were there for about four hours total (most of it waiting and waiting and waiting....you know how human doctors operate..), but when we finally saw Dr Parsons, she had the following to say.

She was thrilled with Julia's gains in the motor department. She said she was getting around really well, and Julia even attempted to run a few steps while she was there. She was happy with the tone in her arms and legs. She was happy with how much she was using her left arm and hand as she never used it like that previously and would use her mouth instead as her second hand. She was thrilled that Julia could point to most of her body parts, including her brain (thanks Shawn for teaching her that one...it is cute!).

The things she wasn't so happy about were Julia's cognitive functions. Julia was "playing" in the office as we were talking, and towards the middle of our talk it looked like a tornado or hurricane had hit the office. (Like my house looks most of the time). She asked if this was typical behavior and I answered honestly - yes. She also was just sitting back and observing her and said she does not think she is suffering from a "typical" global "delay" in her behavior and milestones. She said she is showing some definate neuro atypical behavior.....behavior that may resemble autsim. She recommended a very structured all day program and mentioned a couple places - that are not near Castle Rock and asked me to look into them....I did....and they are 4K a MONTH for "full time" M-F from 8:30 to 2:30 pm........so not sure how that would work out unless I win the lottery. So, not sure exactly where to go from here, but called Julia's case worker and left a message for recomendations. Hope to hear from her soon.

I received Julia's end of year summary from her preschool, and she received all "1s and 2s" on her objectives that they were trying to get her to meet - meaning she did not meet them, thus qualifying her for a continuation of the program through the summer months....so that is bitter sweet - at least she can keep going without a break, but I wish she would have met more of their goals. Keep trying baby girl, you WILL do it someday.

I have visitors coming from Oklahoma this weekend, Sissy and Howard are coming to work with Julia and I and others close to her, to try to help her conditions. Looking forward to their visit.

Susan