GO ROBERTA!

Spoke with Julia's Life Care Planner Tonight -she will be here within the next few weeks. She had a lot of insight into how she would represent her against the dept of human services Life care planner (who she said was a "female dog" - my response - LET ME AT HER!) Anyway, I am hopeful for some financial and resourceful help for Julia for the rest of her life. Julia will likely be unable to live independantly - ever, so her future depends on Roberta and Ron. PLEASE PRAY AND BELIEVE - in the system and more importantly, in God.

Susan

why oh why do my links not work...if anyone knows tell me how to fix it....this is an awesome video, even though julia is not "autistic", her neurologist said she would benefit most from a program for autistic kids......

please copy and paste.....

http://www.youtube.com/watch?v=HDdcDlQVYtM

another cancellation

Julia's attorney will not be able to make it out now til the new year....cancelled yesterday. The life care planner will still be coming out in november, but not him. Dissappointed to say the least. Oh well, it will happen soon, i suppose. We are closer now than we were three years ago.

Susan

Mark Shultz song - can you hear me - change the "son" and "him" to to "daughter" and "her" and I love it. Borrowed from Santana's web page...

I'm down on my knees again tonight,
I'm hoppin' this prayer will turn out right.
See, there is a boy that needs Your help.
I've done all that I can do myself
His mother is tired,
I'm sure You can understand.
Each night as he sleeps
She goes in to hold his hand,
And she tries
Not to cry
As the tears fill her eyes.

Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place some how.
See, he's not just anyone, he's my son.

Sometimes late at night I watch him sleep,
I dream of the boy he'd like to be.
I try to be strong and see him through,
But God, who he needs right now is You.
Let him grow old,
Live life without this fear.
What would I be
Living without him here?
He's so tired,
And he's scared
Let him know that You're there.

Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place some how.
See, he's not just anyone, he's my son.

Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place somehow.
See, he's not just anyone.

Can You hear me?
Can You see him?
Please don't leave him,
He's my son

Julia's neuro appt today

Julia had her 6 month follow up with neurology today. The news is not good or bad - not suprising -basically just wait and see again. One bit of concern was that her head has not grown since the vaccine injury three yrs ago. Her weight and height are in the 75 and 55% but her head is too small to even be on the charts. I asked about repeating an MRI and they said it really won't give us much information and that the only way to see if she is getting better is to SEE her get better. She explained to me that with the damage being primarily on her frontal lobes of her brain (both sides) that she is always going to have issues with behavior and impulse control. She said she will never be normal. But that she still has hope that she will improve - to what degree??? nobody knows. She said me putting her in that school that I did was the best thing I could have done for her - that hopefully the structure will teach her about appropriate behavior and socialization. She said it will likely take a lot of time, and I only have enough money for about 10 months for the school, so i will have to figure that one out.

I am so so so very angry about what happened to her. The dr's seem so callous - well maybe not callous, but just very "nonchalant" or "indifferent" about it all - i guess i get that way too in vet med, but these are people KIDS, not just dogs and cats. I don't know - i want it put to me straight, but it hurts to see them so...whatever....about it. They never knew her "before" - that she was an incredible baby with a fabulous personality, and now her life is FOREVER changed because of a stupid vaccine, for something she NEVER would have probably gotten anyway. I am so sad today. Happy birthday to me.....whatever. I just want to go to bed - tomorrow is another day.

Thanks to all of you who show your continued support for Julia and her crazy mom! :) Kidding, sort of.

Susan

Happy moments, praise God.
Difficult moments, seek God.
Quiet moments, worship God
Painful moments, trust God.
Every moment, thank God.

So nice and true....I for one will always do my best for you kids - I ain't perfect by any means, but will never just leave you hanging. I will always "just deal with it" for you. You are the reason for my existance.

"There is no trust more sacred than the one the world holds with children. There is no duty more important than ensuring that their rights are respected, that their welfare is protected, that their lives are free from fear and want, and that they grow up in peace" - Kofi Annan