This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!
Tuesday, September 21, 2010
Woo Hoo
I AM IN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I've just recently learned and read up on your story. THANK YOU, THANK YOU, THANK YOU for taking a stand and fighting not only for your beautiful daughter but also to put this story out there for parents like myself.
Our daughter has a smimilar story. And you have inspired me to look into this further and see what I can uncover for us as well.
We have a beautiful daughter named Emily who did't present any disorders untl after her vaccinations. She has been battling this since her first round of vaccines and she is currently 15 months old.
We too have a blog if you would like to check us out. http://ourbeautifulemily.blogspot.com/
I would love to establish some sort of communication with you if possible.
Thanks again for what you've done in coming out with this story!!
i briefly looked at your blog, but had kids to get to bed.....let me know if you have questions about the vaccine injury program.....i can let you know if you might have a case.....
Julia was born a healthy baby on 12-28-05. She was a delight to her family.
On January 5th,2007, 1 week past her 1st b-day, our family's lives changed forever. Julia had been seizing most of the night, was transported to the nearest ER for stabilization, and then airlifted to Miami Children's hospital, where she stayed in PICU and the neurology ward for nearly one month. Her diagnosis? Encephalitis (inflammation of her brain) most likely attributed to the MMR-V (measles, mumps, reubella, chicken pox) vaccine she had received nine days previously.
When Julia left the hospital, she was functioning at an 8 week level. She is globally delayed, nonverbal and has significant left sided hemiplegia along with severe behavior issues.
It has been over 4 years since her MMR-V encephalitis, and Julia has progressed, but has a very long way to go. Julia's case with the Vaccine Court was recently conceded and the settlement is complete. I am thankful for the government's concession.
Julia lives with her brother, Jack who is 8 and her mom, Susan, and Mr. Shawn. Julia and her family are hanging in there and hope you enjoy her blog! Go Julia!
Susan,
ReplyDeleteI've just recently learned and read up on your story. THANK YOU, THANK YOU, THANK YOU for taking a stand and fighting not only for your beautiful daughter but also to put this story out there for parents like myself.
Our daughter has a smimilar story. And you have inspired me to look into this further and see what I can uncover for us as well.
We have a beautiful daughter named Emily who did't present any disorders untl after her vaccinations. She has been battling this since her first round of vaccines and she is currently 15 months old.
We too have a blog if you would like to check us out. http://ourbeautifulemily.blogspot.com/
I would love to establish some sort of communication with you if possible.
Thanks again for what you've done in coming out with this story!!
God Bless,
Joe
i briefly looked at your blog, but had kids to get to bed.....let me know if you have questions about the vaccine injury program.....i can let you know if you might have a case.....
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