Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Sunday, September 5, 2010

Please God, let me know my path......

I have a meeting with Dr Larry Magnuson on Tuesday morning. For those who know, you know how important this is for me! I hope to get somewhere with him on Tuesday. My life has evolved in a new direction and I hope this Dr Larry is a start to a new beginning for me and my family.

Julia is doing great. We have hired a new ABA therapist, and she will be starting with Julia very soon. This should help greatly with some of her more trying behaviors. Julia is doing great in God's grace and His plan for her and for my family.....it is hard for me and for Jack, and for Shawn, but...it is his plan, and we will keep on keeping on. I truly feel something is going to change soon! I just read 180 pages of Temple Grandin's new book - "The Way I See It" - and have a new insight into how Julia may percieve her world. Helps to read and understand these things - how difficult it must be to be her. Sometimes we get so caught up in how it is to be "us" but this book opened my eyes to what it is like to be HER. I know several people in Shawn and I's family who should read this book, but will not push it on anyone. So odd how the themes of family, taking a step back, travel through all of our families. I do not feel so alone anymore - this is sad, but normal. Even some of the stuff I have gone through in the last week with Jack and school - all normal for the life of a family with a disabled child. Crazy!

Anyway, Will let you know how Tuesday goes. I hope to have a new career soon, but we will see.......not putting all my eggs into one basket - I have a family to consider here.

Take care, all!

Susan

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