What a day so far..............

So, this morning Julia had her neurology follow up. The Dr was very happy with her progress since she saw her six months ago. She discussed repeating an EEG since it has been a long while, but decided it was really a moot point as, she was not going to take her off her seizure meds, as the area of the brain that is destroyed in julia's head is a prime site for seizure formation and since Julia has been seizure free on her meds, she wants to keep her that way. We discussed meds for attention span - as the Dr said that Julia was in her "prime" for learning. She is gauging her at about 18-24 months developmentally - and because julia has been doing some great things with immitation lately, she wants to take advantage of this great window that we have. She said the biggest thing holding Julia back was her attention span - which is about 10-30 seconds......so.......we are going to try some meds. She said she could NOT promise that it would help, but that it might, and that it in no way would make her at more risk for seizures, especially since she is on meds for seizures....so.....we will start her tonight at a very low dose and see how it goes. The appointment went well - Julia was happy for 90% of it and the Dr just commented on how different she was compared to the visit last year. Yeah Julia!

So, then the day kinda spiraled from there......I thought I was supposed to be at work at 1pm...so I rushed around after dropping Julia off at daycare to drop off her prescriptions - for the new med and her seizure meds, as those were running low as well. They asked if I wanted to wait for them, and I just said I would pick them up after work.....I then had a few spare minutes before work - so I took all the medical records that I ordered and paid for since december (over 100 pages just from PT OT ST) (this was a whole nother fiasco to get the records that we don't have to go into - I got them and that's all that matters....) into kinko's to make copies - a copy for the attorneys and a copy for the new pediatrician that is going to start seeing her - i ran the copies into the peds office and tried to make an appt for Julia just to meet the new dr so he could put a face together with all the records. I requested a tuesday - they said he doesn't work on tuesdays......so, I scheduled it on a friday in July that my boss gave me off for july 4th holiday. Then - rushed into work as I was running "late".

I walk into work and everyone just stares at me.............I'm thinking..."what......did I lose my job due to my memo" (those who know - know what I am talking about). Well, it turns out this was my tuesday off.....so I got Julia's medical records in an envelope so I could go back to kinko's and mail them. I get to kinkos - and they need the phone number of the attorneys office for the mailing. I don't have it on my phone. So I call Roberta, the life care planner, she doesn't answer her cell. I called her office - she is out. I begged the woman who answered to google her attorney to get me the phone number and she did. Whew....so, off the records went.

I then went to Walmart to pick up the prescriptions I had dropped off earlier. Well, a whole nother fiasco there! The neurologist had written one of the prescriptions with the wrong dose on it - just a simple "0" missing, but it was definately wrong and the pharmacist would not dispense them due to legalities - which I understand. So I call the neuro department and talk to the nurse about it - we get that all figured out, but they cannot get a hold of the dr to confirm the dose and OK it. The pharmacist and the nurse talked and we all agreed on what the dose was supposed to be and they dispensed me the new meds. BUT, then, on the seizure meds, the dr did not write or initial the "name brand only" part of the script - so, they could not fill that one until she does that, as with medicaid it is considered "fraud" unless the dr specifically states name brand only. I call the neurologist nurse back again.............and they said they were sorry and would get with the dr asap to get it filled. Holy Crap. Why do things that should take 15 minutes take two hours?? I left work at 1:30, and did not get back home til after 3pm just dealing with all of this.....all I wanted to do was watch a movie before the kids came home! Well, maybe I can watch part of one now......whew!

Lets hope the day turns around - my brain hurts!

Keep smiling - all in all, these things were aggravating, but nobody got hurt and tomorrow is another day! :)

Susan