Using Julia's Blog as a Calendar.....

Just trying to keep all these appointments straight...thought I would write them down here...

Tomorrow we have a brace fitting at the main hospital in Aurora at 11am - fourth floor. Then tomorrow night Shawn and I have a "date night" - a toilet training lecture for parents with special needs kids! We are so excited to get out! :)

May 25th, tuesday, we have a neurology follow up with Dr Parsons...can't remember what time, I think in the morning, can't remember what floor - I think fourth - at the main hospital in Aurora. We are going to discuss how the botox is going, talk about restraint therapy (casting her good arm), discuss meds for attention span - the pros and the cons, and remeasure her head to find out if it is growing. I am also going to ask about her hair...it is still so "baby like" - I have no idea if her brain injury and lack of head growth could have something to do with her "non aging" hair....silly I know, but its a question I have!

Also, Shawn and I have been invited to participate in a “coffee table discussion” with Dr. Susan Hepburn, nationally reknown autism researcher from JFK. I explained to the coordinator that Julia is not autistic per se, but that we do experience a lot of the same issues as parents of autistic children. This is on May 29th in the afternoon. This is exciting, as the discussion will be taped and used as a training aide for respite care providers working with kiddos like Julia. The coordinator said she was so excited that there would actually be a man there - when we were contacted, only the mothers' had volunteered their time. Thanks Shawn.

Wednesday, July 28th, we have a 4-7 hour neuropsychology evaluation in aurora at the main hopital at 8:30am til??? I am excited about this as this appointment will tell us about Julia's cognitive functions. I really want to know where she stands. I think she is smarter than many give her credit for, and even if she isn't, I want to know where she stands...so this is exciting!

I think that's it for appointments other than her usual weekly PT, OT, Aug Com, and Hippotherapy....those I can remember!

Susan