Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Wednesday, January 27, 2010

Let the Talking Begin!

Julia's electronic talker is on order and should be delivered in 4-6 weeks via FedEx! Woo Hoo! While it does not solve all of our communication difficulties, it is sure to help somewhat! I am so thankful for Julia's Augmentative Communication Therapist for dealing with most of the paperwork involved with Aetna and Medicaid to make this happen! Thank you Lisa!!!!

I also spoke with Dr Parsons today, Julia's neurologist, as another friend of mine has a child who suffered from viral encephalitis at one year of age, and her Dr told her to expect her daughter to have a shortened life span. I inquired about this as far as Julia goes, as, other than her brain, the rest of her seems quite "healthy"! The good news is that Dr Parsons says she sees no reason why Julia would not live a normal life span! Great news! And great to know as far as planning for her future.

ALSO, something cool happened at work today - we had two reps from Merial (VACCINE reps) come in to talk about how to change protocols from yearly to every three years or more....interesting timing. I asked if they could get me something that listed EVERY ingredient in the vaccines, and they said most of that was "not available" but that they would try.....WHY is all this info private? I know why........anyway, still an interesting thing from work today. We will see where it goes.

Susan

1 comment:

  1. So, do you think that work will change their protocols? I was thinking the other day how backwards it is that we are changing ideas in the animal world and examining the true facts. It just shows how big industry influences people medicine.

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