Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Saturday, January 2, 2010

Happy New Year!

Well, 2010 is here. I can only see positive things going forward this year. As I look back on the last year, I realize how far Julia really has come. It was very evident last night when we celebrated her birthday. On the ride over to the restuarant, she was being silly on purpose loving the reaction she was getting from us. We ate our food, she opened her presents - mostly by herself - and then the CAKE! She was NOT content with just one piece - she pulled the cake over to herself and ate it - alternating between her fingers, her fork and her knife. She was so happy!

I am thankful for her progress and thankful for those of you who have helped her along - her friends and family, her doctors, her therapists, my friends, my new friends in similar situations that keep me sane, and many others. Thanks to all of you!

This is a great link on a story of two Colorado kids who got stem cells and their progress. I wish we could raise enough money to do this.....its close to 20K plus travel to another country, as stem cells are not offered here....

http://www.kdvr.com/videobeta/watch/?watch=d203f619-8239-46bf-813c-a7e5a1e70099&src=front

Please copy and paste!

Talk to you all soon! Julia and Jack are with their dad today - hope they enjoy their time with him this weekend!

Susan

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