Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Monday, August 31, 2009

Escape Artist at Daycare

Well, it appears the pack-n-play is almost outgrown over at Dawn, the daycare provider's house. Dawn put Julia down for a nap, as usual, around 1ish. She went up to check on her 30 minutes later and noticed that the light was on and then heard noises. She opened the door, and got a taste of what my house looks like all the time. The pack-n-play is in Dawn's teenage daughter's room. Julia got out and emptied every drawer within reach and spread everything everywhere. Her clothes, her makeup smeared into the carpet and all over herself, her hair products, every kleenex pulled out of the box and strewn about the whole room, the mascara - everywhere, her necklaces and earrings, everywhere. I feel like I am obligated to buy her daughter a gift card to replace the makeup and facial products, and Dawn a gift card for a steam cleaner for the carpet. Luckily she didn't smear the mascara on the walls as she has done here. I feel so bad for them and for Julia for not knowing any better. She was just having fun.....she did get in trouble, Dawn said.

Since I have been home she has opened a child proof container twice - once while I wasn't watching, I then replace the cap and gave it to her so I could SEE her do it, and, within 60 seconds it was open and poured out on the floor. Luckily it was just a folate supplement (for me - for anxiety and depression!).

Also, the school today called and said Julia was very crabby today, and Dawn confirmed that when she went to pick her up she was screaming uncontrollably and they let Dawn remove her from the class early as they could not console her. She was this way all weekend, too, so I have a Dr appt for her tomorrow just to make sure she doesn't have an ear infection or something similar, before I go out of town. Good luck and THANK YOU to those who will be watching her while I am gone.

Susan

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