Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Wednesday, June 24, 2009

Therapy today....OUCH!!!

Julia had quite a day in therapy today. First, in PT, her brace (finally) came in. They originally said it would be a short one, but they decided to order the taller one to see how she did with it....if it still rotates her foot in too much, they will cut it down. They brought some shoes to go over the brace, but didn't have the right size....the 8's were too small, and the 10's are HUGE. THey are going to order some 9 wides for her to try....in the 10's she looks like a clown - they are so big, but she did really well with them. She got to ride her favorite bike (Freedom Concepts, I think, makes them). It has a seat with a back that she can be strapped into, and straps to keep her feet on the pedals. She is not real good at pedaling yet......won't use the left leg....but her PT is working on that.........

Then on to OT and Speech. In OT, they casted her right arm today to make a removable cast for "restraint therapy"...where they restrain her right arm and force her to use her left more. Anyway, they put the cast on, let it dry, and then were cutting it off (it will be a removable cast) and they cut her hand pretty good with the cast cutting shears. I knew they did that when she started screaming - they thought she was just fussy because she had to hold still, but I know her cries better than that - she was hurt. They got the cast off, and sure enough, she was bleeding. Not real bad, but I am sure it did hurt. She will be fine, but poor baby. I didn't make too much of a stink about it, as it was an accident and these things happen, but I did feel terrible for her.....

So, starting tomorrow, we're strapping up her left foot and her right hand! She's going to have a happy day in daycare! Sorry Dawn!! :)

I tried reaching Julia's attorney today with some questions regarding a time frame on her settlement, but didn't hear back. The last time we talked he seemed to infer that it would be a while, and that it may be better if we waited even a year or more to settle to see where she is at cognitively as she grows up. Anyway, just waiting to hear back. I want to sign her up at a very structured (and very expensive) school if her settlement will come relatively soon. I will work to pay for it until the settlement if I have to, but just need more info from him. I'm sure I will hear back soon.

Talk to you all later!

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