Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Sunday, June 14, 2009

Still in shock....

I am still in shock at the governments decision. I am very thankful, but again, very sad to know that it truly was the vaccine that caused her injury. My emotions go back and forth on an hourly basis. Of course I always "knew" it was the vaccine, even when all the doctors said it was extremely unlikely, even when I would get "the look" from other people I told her story to, strangers, even some friends - I could see they thought I was reaching and just trying to blame her condition on something...anything....but I was not. I have been vindicated. Julia will be supported. My financial life has a chance of coming back from a very bad place.

I also have noticed that her story has been posted on the internet in several areas saying her case was an Autism case that was won. All I can say is that she was never given a diagnosis of Autism. I do not want this to be misunderstood. Her case was decided as an ENCEPHALITIS with resultant brain damage and epilepsy case. I do feel for all of you out there with the Autism diagnosis - I really do, and I hope that Julia's case, in some way will help all of your cases. I will do anything I can to help support your cause. I just do not want her concession to be misunderstood.

Thank you all.

Susan

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