Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Monday, March 14, 2011

Will it ever end................................................

So, Julia has been crying a lot for the last few days. Finally tonight I was at my wits end (along with her caregiver), and took her to the Dr. Yes, mother of the year, she has a severe double ear infection......................Dr recommended seeing an ENT dr..........since she can't blow her nose and constantly has her hands in her mouth, she is always sick. He recommended "another" MRI to check her sinuses and may need some surgical work on them, along with tubes in her ears...............oh, the joys.

I am so tired of not knowing if she is crying and screaming because she is who she is, or because she is sick. I feel so bad for not taking her in sooner........well, live and learn I guess.

Susan and Julia

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