Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Monday, October 18, 2010

Tomorrow.......

So, tomorrow is more than a "typical tuesday" of PT, OT, Aug Com....we have to get fitted for julia's (8th??) brace before her therapies....we were hoping the botox she had last month would restraighten her leg enough for the current brace to continue working, but, alas....NOPE. Time for a new one. This one is going to be pretty "complex"! It can work is two ways - as a tall one up to her knee, or as a short one only to her ankle.....so HOPEFULLY, we can make EVERYONE happy with this one, as none of her therapists can agree on what is best...and what do I know.....So, this convertible one should be great!

Expecting to hear from Julia's attorneys soon - if not, hearing is set for the fourth of November.....then at least this part will be done....then just to figure out how to go forward....which attorney do I need for this? So confusing. NEVER thought I would need so many attorneys. YUCK!

Anyway, it will all work out. As far as job prospects - I have a potential spay/neuter ONLY practice that wants me for at least two fridays in November...and they may hire me on for Friday, Saturday, and Sunday for a while. OR, if they don't....I have a potential offer with a mom of a 21 year old CP child (adult) who needs care every weekend....from $50 an hour to $15.....but, hey, if I can learn what may lie ahead for Julia - it would be great experience until Caring Pathways takes off! I am excited about either. AND excited to start exercising on my "days off" until Caring Pathways needs me! It will all work out. Forget the bad dreams I've been having lately.....as one friend put it - "I have always been a firm believer that if you are doing what is morally right, the creator of the universe will make a way out for you and provide abundant blessings." So, I am counting on that! :)

Good night all - and pray for julia's patience tomorrow during all the therapy and brace fittings!

Susan

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