Life moves at a very rapid pace, I have seen lately. So much has happened with so little time to document anything. I will try tonight.
First and foremost, my new daycare provider, Kayanna, is a miracle sent from God. She has jumped right in and done above and beyond what I expected. I can't wait for the settlement to hit so I can pay her better for her time that she dedicates to not only Julia, but our whole family. We are pretty sure funds will be allowed for live in care when we get the settlement, and I think she is it. What a great provider and friend she has become in such a short period of time. THANK YOU KAYANNA! Julia LOVES you. We love you for taking the time to take her places, just like any other kid, and being able and willing to overlook the stares that come with doing so. Shawn and I ordered some business cards to hand out to those who give those evil looks, or say those evil things when she is out and tantruming. I experienced this yesterday while at Elitch's with the kids when Julia was melting (from the heat and overstimulation).....can you believe a group of people behind us in line said, "if that were my daughter, I would have slapped her in the face by now"....I just picked up my daughter, held her close, and turned and gave them the evil eye - and to those of you who have experienced my evil eye - it speaks volumes - no words really needed - but I would have liked the business card.
Secondly, I have met an amazing veterinarian who has gone through a horrific murder of his son many years ago, who understands loss, and wants to become a part of my family's life. I so hope he keeps in touch. His son's story was documented in a book called "10 Minutes Till Midnight" and I read all four hundred pages in just over two days. What an inspiration. His biggest thing he has taught me is to stop questioning God. God has his plan, and everything happens for God's reason. It has helped me immensely when I find myself frustrated with Julia. Saturday, as I was towards the end of the book, I snuck in to Julia's room, and just watched her sleeping for about 10 minutes, said lots of prayers for her, and for my family, and she woke up HAPPY, instead of crying like usual, and she had the best night ever. Maybe she felt it, I don't know. I am trying to forgive and not be angry with everyone about what happened to her. It is hard, though, to forgive a pharmaceutical company and a government who knows what vaccines are capable of. It isn't like I have ONE person to forgive for murdering her....because she wasn't murdered - she is still alive, but damaged, and by something manufactured to protect her..but I just know too much about vaccines to let it go. I keep thinking about the other kids I have learned of injured by vaccines. I keep thinking of my friends and the decisions they have to make with their children after knowing Julia and I. I keep thinking of all the new babies arriving happily to their new families who will also suffer Julia's fate. Anyway, I will stop rambling. I will get there some how, some way.
Lastly, Julia started back at school today. She is in a new class, and did just fine today. Shawn sent me pictures from the drop off, and one of Julia's classmate's moms emailed me today to see if we could get the kids together and get to know each other better. Jack is back in school and doing great. He joined the cub scouts and is at his first meeting tonight with Shawn, who is pretty sure he will be a cub scout leader.....like we need another thing on our plate....but that is just Shawn.....we will figure it out and make the time to do it. I'm just glad Jack has this opportunity.
Anyway, things are going well here. Shawn and I are speaking for the "Professional Miracles Foundation" next Monday night at Pradera Golf Club. Shawn has also organized a softball tournament to raise money for Julia's school which is a non-profit run special needs school. All money raised will go to the school, not to Julia's tuition, so if anyone is interested email me or him for details. It is scheduled for October 9th.
Julia is also going to be video taped using her augmentative communication device (her "talker") by the manufacturer, as Julia's Speech Therapist is so impressed with her ability to figure it out. They are going to tape her at Speech Therapy, at her school, The Rise School of Denver, and at home. Pretty excited about that. Shawn and I were also video taped at a round table discussion on children with disabilities and training of respite care providers, which should be out soon. Whew! We are busy folks - but everything we are trying to do is good - and it is all for others - so we feel great about it!
Julia is scheduled for a "stroller/wheelchair" fitting next month to make outings a bit easier, as it is hard for her to walk long distances and she gets tired and her leg starts hurting. She is also scheduled for her next round of botox to "re-straighten" her leg again- the last round has worn off...hopefully the botox will prevent us from having to get her another new brace, as the one we just got is no longer working due to the worn off botox.....ahh, the appointments just keep coming, but - DON'T QUESTION GOD'S PLAN. Yes, Larry, you are right. I will just keep rolling with it.
Thanks to all of you who continue to follow and support Julia and our families efforts for everyone!
Susan
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