Welcome to Julia's Site!

This blog is made available for several reasons. First and foremost, to keep those that know Julia current with what is going on with her and her progress. It is also my intention to educate those who do not know Julia about what happened to her, so they can make educated decisions about their own children. I want to welcome those of you with questions about her disease, treatments, and just the general life (the good and the bad) of living with a brain damaged child. Finally, it is a therapeutic release for me, Julia's mom, Susan. I love writing and need to get some of this stuff out of my head and onto "paper". Thank you!

Wednesday, July 29, 2009

Amazing..............

So, I have been trying to get Julia set up for an Augmentative Communication Evaluation for about a month now. Lots of paperwork, phone calls, etc etc etc.....and FINALLY the woman called me back last night to schedule it. She told me the appointments are always on Wednesdays, to which I said, PERFECT, because I am off wednesday mornings (well, off from work, julia has PT OT ST wednesday mornings). So, she said, the first available appointment we have is on Wednesday NOVEMBER 18TH at 9 am and it will need to be a 3 hour appointment. THIS IS OVER THREE MONTHS FROM NOW!!!!!! I could not get it through my head that there is such a long wait, as that means there are soooooooooooooooooooo many kids that need this service - so many kids that have such severe communication issues that they need a communication device (computer, etc) to communicate with the outside world. This led me to think about how there are NO special needs schools in Douglas County. One of the wealthiest counties in Colorado, with a TON of kids, many of which I am sure have delays of some kind or another - espeically with the autism rate at 1 in 150 boys now, and no place for them to go and recieve the intensive interventions that may benefit them! I am just shocked. Maybe this is my calling? To get out of Veterinary Medicine and vaccinations and do something to help all these kids????? But this, of course, requires millions of dollars and I have NO IDEA how those sorts of things get started, and liabilities, etc.....so likely will just remain a dream of mine, but it really should be done! I am sure that there are many, many parents in my same boat (but who are significantly better off financially) that would appreciate something like this HERE - not in Denver or Lakewood or Ft. Collins, etc. Just a thought.

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