Ophthamology appointment

I have scheduled Julia with an Ophthamology appointment on the 20th just to make sure Julia's eyes are OK, as with brain injuries, and especially those resulting in hemiplegia (one sided weakness) often affect their eyesight. My gut tells me all is OK with her eyesight, but I just want to make sure before her Vaccine Injury settlement comes through later in the year (maybe). If she has issues, they will have to cover this as well.

I am going to also schedule an audiology appt for the same reasons - brain injuries often affect hearing - and just want to make sure she is ok, and I think she is, before the settlement.

Trying to get all my "ducks in a row" before the final settlement....if she needs help, it needs to be documented.

Will let you all know how she does....

She did great in PT today - she actually hung and swung from a bar today! I have video and will post if i can figure out how......and to think three years ago she couldn't even walk....GO JULIA!!!!

We will get through this baby girl! And our education is WORKING!

Mom

People come, people go......

So, I had an interesting conversation with a good friend tonight about an email she received from her mother - judging her on how she is raising her kids and the values, etc, she is instilling in her children. She got her email, the same day I got my letter............

It is interesting how those (supposedly) closest to us bail sooner than those who see the situation from a different perspective. I have decided to just let it be.....

Had a nice dinner with Shawn and his mom and her husband - their car license plate was "K -Sera".....I had never noticed that before.....

K-Sera Sera.....I guess that is how it goes.

So, we lose some, but we gain many. I have met so many wonderful, strong people and learned so much from others through this whole journey with Julia. I have "lost" many who I never thought I would have in a million years during this journey, but gained SO MANY MORE to offset the number that have dropped off. K - Sera.

Anyway, Jack and Julia, people come and go. The important ones stick it out, as I always will for you!

Love you kids!

Mom

What a couple of days.....

Memorial Day, 10am, Julia hit herself in the eye with a book - crying all day long, put her down for a nap at the usual time thinking the sleep would do her eye good - she got up at the usual time, and the bawling began again. So I called the ER to speak to a nurse to see if it was imperative that I bring her in to be evaluated - her eye itself looked fine, but she had been rubbing so much she had a good "bar brawl" shiner going on. Waited an hour and a half - no return call from nurse, so I took her into my clinic and stained her eye myself to check for a scratch - sure enough....there it was. Got her some human approved eye meds we use all the time and put them in. She was great the whole rest of the night and the next day. Her eye is fine now.

Today, she walked behind someone on a swing and got smacked in the head. Bloody nose, but all ended up being ok.

I feel so bad for her. The simplest task - picking up a book, walking behind a swing - things a "typical" 4 1/2 year old would do appropriately - she does not understand. And then she gets hurt.

My heart breaks for her often. How is someone supposed to be there 24/7 to protect her - whether at school, or at home, or at the park, or daycare, or anywhere. I hope somehow she "learns" from these issues as a "typical" child would. I am so tired of hearing from medicaid that she is "close" to "typical" and from other people who aren't here on a daily basis. I just want her to be OK. I don't want her to hurt anymore.

Today was an exceptionally crappy day for everyone here - not looking for pity to those who read this and misunderstand - it just sucks sometimes.

Tomorrow is another day. Chin up everyone here!

Susan